top of page

The Accidental Advocate

Every time we speak to others about our experiences with Fibromyalgia and/or wear purple in May,

someone learns something new.

This section is entitled "The Accidental Advocate" because we don't all wake up one morning and say to ourselves, "today, and from this day forth I want to be an advocate and an example for other people 24/7."   Like it or not, there are certain situations in life that force you to become an advocate.  When you have children, or, a parent becomes elderly or sick, you become an advocate. Once you are, or a loved one is, diagnosed with a chronic illness like Fibromyalgia, you will find yourself thrust into the world of advocacy.

This author learned about advocacy while participating as a patient facilitator in a research project at Access Living of Metropolitan Chicago.

You Might Be An Accidental Advocate if You've Ever Found Yourself:

  1. Explaining your pain (or that of a friend or family member), describing how that pain interferes with activities of daily living, and/or requesting treatment - even if you didn't want to go through the trouble of doing so.

  2. Writing a letter or email to a news station, community program, school administrator, employer/supervisor, etc. to explain that Fibro is real and how it impacts people who struggle to live with it.

  3. Accompanying a friend or family member to the doctor to help them understand their appointment.

  4. Writing to lawmakers, speaking before a government agency, manning a table at a health fair, or walking in a fundraiser.

  5. Attending a support group, patient education workshop/seminar/conference, or public awareness event to increase your personal knowledge about FM.

  6. So passionate about FM (or something else) that you'll talk about it if there's anyone within earshot to listen.

Next:   What is Advocacy?

bottom of page